tag:blogger.com,1999:blog-26193824687355425842012-02-16T09:02:28.556-08:00Things Considered by noni and her entourage of hamsters known collectively as nonisense. This will all make more sense as you read on. I write this in hopes to help anyone with multiple sclerosis (MS) or any other oft debilitating disease.a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.comBlogger841100tag:blogger.com,1999:blog-2619382468735542584.post-166684171314199782010-04-08T13:47:00.000-07:002010-04-08T13:47:39.914-07:00

From improving balance to decreasing numbness and tingling the benefits of yoga for multiple sclerosis are seemingly infinite. This morning I woke weak and nervy from my cold.  A long awaited yoga practice came to mind.  Not that I was at my strongest or my best but it had been too long.  So with iTunes set for my yoga collection a free-flow practice began.  Finding my center and moving from

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com34tag:blogger.com,1999:blog-2619382468735542584.post-46457922486213784612010-03-15T18:30:00.000-07:002010-03-15T18:30:22.648-07:00

Our local ski area for over the past seventy years, Mt. Waterman celebrated its opening day of ski season on Friday.  Locals haven’t been haven’t able to ski consistently since 1939 mainly because Mt Waterman provides snow the old fashion way, from the heavens above. For the first time in years there was snow but no way to get to the slopes because of road closures.  But it opened this past

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com1tag:blogger.com,1999:blog-2619382468735542584.post-63038629483636347442010-02-11T17:03:00.000-08:002010-02-11T17:03:52.103-08:00

I haven't been writing but I've been riding.  Thankfully to good folks at Flintridge Riding Club providing me with a wonderful variety of horses to exercise and play with.  The riding takes energy.  And I found that I don't have the use of my hands as much for typing after a good day of riding.  That is OK - I will taking riding on a beautiful, sunny Caifornia day anytime! Interesting year thus

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com2tag:blogger.com,1999:blog-2619382468735542584.post-23085436009566170492010-01-09T17:05:00.000-08:002010-01-09T17:05:42.477-08:00

Obviously I've been quite quiet about my MS.  My blogging is way down.  My MS I would rather forget right now.  I've lost use of my limbs so many times this week I have lost track of counting.  The numbness, tingling, annoying pain.  So instead of blogging I've been working on my photography site. I need this for next year and beyond.  I'll try to post from the photography service.  Been playing

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com1tag:blogger.com,1999:blog-2619382468735542584.post-69273052867924250262009-12-13T10:02:00.003-08:002009-12-13T10:02:09.591-08:00

Facebook | My LinksPosted using ShareThis

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-262107642289825562009-12-13T10:02:00.001-08:002009-12-13T10:02:09.250-08:00

Facebook | My LinksPosted using ShareThis

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-49851371041904490262009-12-11T14:04:00.000-08:002009-12-13T09:57:22.247-08:00

Survival of the FittestTeam Athleta • Aug 28th, 2008 • Category: Adventure Travel, Customer Spotlight By Caroline “Noni” Craven, Adventure Traveler and Photographer Adventure is my game. I’m not an extremist, but have been known to play: white water kayaking, mountain biking, rock climbing, anything and everything in the snow. Name it, I tried it. A previous life was filled with

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-59477590939630862009-12-05T20:15:00.000-08:002009-12-05T20:15:23.756-08:00

Expressing myself through writing comes and goes, not different then the rivers of wild.  Seasons effect.  Life evolves.  I am not as consistent as I would like.  I am frigid and scared to express true words.  More on me later. Time to do what I did earlier:  AIM yoga, meditation, Shentrition, exercise, friends and family.  Everything important to me and not in that order.  Live strong as

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-11616606350379687342009-11-30T14:40:00.001-08:002009-11-30T14:51:30.467-08:00

Anti-Inflammatory Dessert Recipe to Astound Your Friends! Posted using ShareThis Now how is a recipe I can respect!   Medicine in a bowl.  Thank you Alex.  Always the resource of wonderful remedies.

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-19609223565265761672009-11-18T19:54:00.001-08:002009-11-18T19:54:52.257-08:00

banosOriginally uploaded by nonisenseOne of my favorite photos. The city of Banos, Ecuador. The lights to the right represent the new evacuation route as this is volcano country. Taken from the lodge at Luna Runtun. Loved that place!

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-22406988560854846552009-11-13T19:55:00.001-08:002009-11-18T18:53:19.443-08:00

mobula Originally uploaded by nonisense Mobula Ray, Galapagos Island To remind me about the importance of patience.  Each of my photographs, every image, a result of an inner peace found when one reaches the zone.  But with multiple sclerosis sometimes it's difficult to be in the zone physically and mentally due to a variety of symptoms the disease brings about. Wildlife photography provides a

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-27663279934259768102009-11-10T14:14:00.001-08:002009-11-10T14:20:29.863-08:00

Periander Metalmark [Rhetus periander] Originally uploaded by nonisense Taken by the Green River in Ecuador on travels from Banos to Amazon.  The sun was out.  A brief rain had fallen.  Butterflies were out dancing - not to be forgotten! Periander Metalmark [Rhetus periander] Times like this where I am thankful that I can focus on a butterfly and ignore the debilitating disease is multiple

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-45621443480626947062009-11-03T19:58:00.000-08:002009-11-03T19:58:50.300-08:00

So the toddlers are gone.  The house is instantly quiet at 7:52PM.  Should I cede to bed as well?  go out to celebrations around town regarding school board elections?  stay home and get caught up on friends and family?  Yeah. The last one. Friends and family.  Always a priority.  With Multiple Sclerosis one must define priorities.  Bummer at times but helps in the long time.  January will mark

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-60014045429387562662009-11-03T18:28:00.000-08:002009-11-18T18:56:53.544-08:00

A priority with MS - stop and observe the roses, it's critical.  I had not realized how run down my body had become after this summer.  I had a flu shot which has never happened.  Maybe it was good.  Maybe not.  But after several colds and my first dose of antibiotics in over ten years, my body needed time to rest and rebuild.  Multiple sclerosis will steal your body of vitality.  It is our

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-90176471982262714082009-11-01T16:54:00.000-08:002009-11-18T18:59:08.657-08:00

It doesn't hurt starting with a sun-shiny day.   One of those Southern California October days. Just warm enough to hang a line of clothes out but cool enough at nights to feel that fall is here.   I'm always washing bandannas but let's admit it, they are about one of the more useful tools around:  lunch carrier, sweat-mopper-upper, instant cooler-downer when dunked in ice water, napkins (

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-6973350704733182242009-10-26T08:33:00.000-07:002009-10-26T15:14:14.952-07:00

Me time - a critical part of life whether one has MS or not.  But today, Monday, is Me day.  No meetings.  No errands.  Time to relax and rebuild.  Some work, catching up on paperwork, admin type stuff.  A production meeting with Self which I do while walking Ellie Hound.  I have several fun projects in the works right now.  Helping some friends out with some marketing work.  Printing photography

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-11130298973351513402009-10-21T09:10:00.000-07:002009-10-22T16:42:22.765-07:00

Many of my friends have been asking about ShenTrition and how it's been helping me survive MS for the past two years.  And we're talking surviving beyond belief.  I'm actually riding horses again - exercising in the heat and taking care of myself a little better each day.  So what I tell folks is to go to http://shentrition.com/ and read what Stephen and Erica have written about stressors.  This

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-63554721883632943942009-10-20T21:09:00.000-07:002009-10-21T08:58:03.125-07:00

sister you've got it all - ...you've got it all... There are no damaged goods with MS.   Its all about the attitude.  Sure we have our weaknesses and faults but who doesn't, especially after some forty years of enjoying the heck out of life.  I surely don't miss the corporate world.  Even the business world.  It's a stressor for me.  I used to love it.  Capitalism.  I would eat it up.  But

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-25044930547609682072009-10-20T20:20:00.000-07:002009-10-21T08:54:07.913-07:00

It's Townes van Zandt.  Interrupting my thinking. Of course it is.  Be here to love me. And where is he?  That man who said he would be here in the morning.  How many times have I heard that crap.  Seriously.  I do wonder if folks see me as damaged goods.  I have a lot of weaknesses.  My inability to drive in traffic and highways for one.  My need for naps and rest.  Having to

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-85594212822850917652009-10-16T17:58:00.000-07:002009-10-16T17:58:30.444-07:00

Friday.  Grateful Dead rocking my headphones.  Time to chill and rewind.  What a strange couple of weeks.  The relapse.  I pushed and my body pushed back.  The cold.  I pushed and my body pushed back even harder.  There was no decision to be made - my relapse was here to stay.  My Shen-Cleanse was a release.  Timing was right, energy good.  The other day I was lost for over two hours in a

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-22659272861947161842009-10-15T15:50:00.000-07:002009-10-15T15:51:10.822-07:00

Actually, this poor little guy made several failed attempts at the doves...he/she isn't too swift yet.

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-20674644548084621652009-10-14T16:48:00.000-07:002009-10-14T16:49:14.795-07:00

But boy do I need it.  And what a treat it's been.  Fresh greens at every meal.  "kidney eggs" (whites with turmeric) several times a day. Fruit all day long.  Bacon, because it makes everything taste good and I need some fat.   Chard, turnip greens, Fuji's, Gala's, Bacon, walnuts, fresh Basil, fresh Tomatoes, Humboldt fog, hmmmm...neeed I say more?  Sometimes I can't be as detoxifying as I

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-6902145453325089762009-10-13T19:37:00.000-07:002009-10-13T19:37:17.722-07:00

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-41025528190493511752009-10-12T18:07:00.000-07:002009-10-12T18:07:28.955-07:00

OK, it's 12 October.  Near the middle of the month.  And what.  What have I done?  Been bed ridden.  That is for sure.  Read a couple of good books. Got caught up on sleep and rest.  Most importantly got caught up on nutrition and health.  But the 12th?  Come on.  Slow down.  Can't we jog a bit?  What's the rush?  Just slow down, smell the roses, fall is here.  What a summer.  What, a summer.

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-32305059117836908702009-10-12T12:26:00.000-07:002009-10-12T12:26:52.935-07:00

I am asked almost daily, how are you surviving your MS?  Has it just gone into remission?  No.  It doesn't just go into remission.  At least not for me.   I have to take steps to put my MS into remission.  Lifestyle changes, diet changes, activity changes.  My survival with MS is significantly contributed to my nutritional intake.  As you know I studied holistic nutrition at Bauman College and

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-17264286555144501922009-10-12T10:04:00.000-07:002009-10-13T10:15:25.024-07:00

I will survive, Cake, bringing up memories of kayaking the McKenzie River, Oregon.  Perpetually in my CD while driving up the river, I may never have progressed as far without the help of that quirky music.  And friends.  What a change for me, from working with horses 24/7 to playing with friends and everything outdoors.  I had been a class IV river guide on the Kern River, California, but not

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-48903917759822970792009-10-11T21:30:00.000-07:002009-10-12T08:42:54.073-07:00

Memories as if yesterday, my travels with Kat: 666 miles 6,000 photographs 66 trips to dunkin' donuts.... The year, 2008.  Week long road trip from Lake Winnepesaukie, New Hamphsire to Kennebunkport, Maine.  Photographs, family, food, lobster, driving, donuts, coffee, entertainment, bourbon, lobster, family, photographs.  A lifetime of memories and a time to forget the MS.  Love when that

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-37374822044076575022009-10-11T11:01:00.000-07:002009-10-11T11:01:59.277-07:00

Several minutes at least, facing weeks of built up anxiety, I melt through pigeon pose.  Streams of energy shooting out limbs, new areas of energy released.  Breathing with anxiety through layers of emotional build-up.  There is no point in berating myself for not giving my Self a good Spiral of late.  And there's no point in lying.  A month at least.  Probably two.  Some small practices here and

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-73236247302038051812009-10-08T11:06:00.000-07:002009-10-08T11:06:09.430-07:00

The natural flow of the sycamore held up through the trimmers.  Often not the case.  An umbrella but not harsh to the eyes.  Maintenance on trees is important.  No matter how many tears fall as the plentiful wildlife is disrupted.  Bill Peet is in my head.  The fat little racoon from Shady Glade is wagging his finger at me...Those big sad eyes.  Don't destroy our homes.  OK, enough guilt. 

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-59368859792307973692009-10-05T20:36:00.000-07:002009-10-05T20:36:24.115-07:00

interesting enough, almost immediately after my post about sheryl crow my father asked what was up with the LA Times Magazine.  Now obviously a 77 year old man is not the target audience for the LA Times magazines, breast cancer, or Sheryl Crow, but his concern:  her skin!   Because of the way the photograph was produced it creates a look of extreme sun damage.  He asked me if she was sick.  

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-24485318510481089442009-10-05T19:58:00.001-07:002009-10-05T19:59:17.980-07:00

Patience for the Petrol Originally uploaded by nonisense One of the most beautiful places in the world - the Galapagos Islands, Ecuador. Humbling. To be human.

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-59813277786803268992009-10-05T18:24:00.000-07:002009-10-05T19:43:46.906-07:00

Did you know that some MSers don't talk about what ails them because it is so little understood? I know folks who feel they have to “come out” to express the fact they have MS yet here I stare at the cover of LA magazine with Sheryl Crow, breast cancer.  Even the NFL teams had pink on for awareness of breast cancer.  I think it's great.  It's all about the marketing.  Pink, October,

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-46481587581304458322009-10-04T13:28:00.000-07:002009-10-04T13:28:56.602-07:00

Meet Mitzi, a one year-old Schnoodle.  Pretty cool for a little girl.  I'm more familiar with larger dogs, mainly hound dogs that have been trained to track bears and such.  In fact, this little girl is about the size of a gray fox we treed once, but that is another story, from many lives ago.  For now, I'm watching a one year old schnoodle chase lizards throughout the yard while sipping Yogi

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-73154916887024664812009-10-03T10:05:00.000-07:002009-10-03T10:05:00.435-07:00

Today is definitely a new day.  Yesterday I had foot-drop going on and could barely walk the little schnoodle.  shnoodle.  however you spell it, that's what I was walking.  And then I kicked it into gear for a meeting.  My only social outing of the week.   I'm not sure what it was exactly that healed me this time but most likely a combination of medicine, rest and quiet.  It surely wasn't

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-39829171781961748852009-10-01T09:28:00.000-07:002009-10-01T09:28:10.382-07:00

This has been my longest down time in awhile.  Four days and I'm just coming back to normal.  Having a cold/infection of sorts isn't helping.  I'm taking antibiotics for the first time in some ten years.  Not sure if it's doing the trick.  I'm house-sitting and off the wifi for now.  It's giving me good time to rest and read.  Current read:  The Girl who Played with Fire.  Still in an

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-39815645173912543792009-09-29T14:07:00.000-07:002009-09-29T14:15:41.339-07:00

OK.  I give.  You win.  For today and for yesterday.  But not for tomorrow.  Well, maybe tomorrow but not the rest of my life.  I will give you today.  For now. But MS, listen to me, you will not conquer my life.  You are the catalyst for me to be strong.  Because you, MS, are weak.  You are a pathetic weak variation of some cultured illness that one day will no longer be listed in our

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-47220633909850783082009-09-28T10:20:00.000-07:002009-09-29T14:14:55.512-07:00

Day one of family reunion.   Notice - legs are in tact while hanging at the Cracker Barrel Legs still in tact but dancing has yet to begin.  Day three and counting. Sure fun!   So here's my excuse.  Countless hours on the dance floor.  No legs today but Monday is my weekend so I don't mind one bit.  Time to enjoy, relax, rejuvenate.  Ahhhhhhhhhh. But now it's Tuesday and I'm tired

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-22527191764418628592009-09-28T09:53:00.000-07:002009-09-28T09:53:07.832-07:00

I lost it the other night.  Just cried my tears out.  I was so frustrated and all after an incredibly wonderful weekend of family celebration.  But sometimes people just don't understand the disease.  Especially those that are closest to you which is why it hurts so much. "why don't you just work.  just move.  just get your life back.  just do this..."   they really don't understand how

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-59165231805996320592009-09-25T21:48:00.001-07:002009-09-28T09:13:55.499-07:00

I couldn't walk for two days and it serves me right!  rode horses hard, 100 degrees heat and more.  miss everyone that has given me support.  Love YOU! 

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-60219203080457086102009-09-23T20:57:00.000-07:002009-09-23T20:57:39.531-07:00

I'm heading to Texarkana tomorrow for wedding and family reunion of sorts.  Wahooo!    It will be a blast.  Lots to do.  Lots of photos to take.  People to see.  Parties to attend.  It is all good.  And best of all - almost the whole family will be there including my sista and bro.  Unfortunately some can't make it but it will be a hoot.  I had enough of this insipid disease today.  I stayed in

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-66588843258930799062009-09-23T08:08:00.000-07:002009-09-23T09:01:27.539-07:00

Egos.  Dignity.  Often heard in this modern age to let go of such things.  And not until we are free of these emotional strongholds will we be whole. But maybe I don't want to be whole.  Maybe I want right now!  I don't want to feel 80 years old at 42. I want to go riding today but I had to opt out.  Canceling my opportunity to ride will put me in a foul mood.   And it did. My body is aging so

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-33329785142487474362009-09-22T17:53:00.000-07:002009-09-23T11:23:23.573-07:00

The heat is catching up with me.  But much better than in the past.  I rode a couple ponies today.  My legs felt like jelly.  I slopped all over one horse and I'm lucky she didn't toss me.  I was so close to goosing her. I'm leaving in a couple of days for Texarkana.  Family wedding - should be a hoot.  Hmmm.  Had a lot on my mind earlier but it seemed to have escaped me. Found an

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-61890589823549216992009-09-21T19:56:00.000-07:002009-09-21T20:04:45.169-07:00

Yeah, I was wiped today.  completely wiped.  I knew the extra couple of hours in the heat, sweating, would pay it's toll. But oh how it was worth it.  I got a great ride in on last Saturday:  trail, field, arena and jumps all on the same horse.  He rocks.  My MS - what a day. I woke up, read some Baldacci, and then prepared for the day. My legs were gone. Spent.  I might as well have run a

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-39180978362657728782009-09-20T08:38:00.000-07:002009-09-20T08:38:44.257-07:00

This weekend rocks. I prefer not to have too many expectations. I can't. Or better said, I am learning not to have expectations. Mostly due to my multiple sclerosis. Life has become a continuum of randomness. For example, on Friday evening, during a lovely and entertaining dinner party, my body started cramping and seizing. I had to stand up. The tension of sitting on the dining room

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-21705282443502867512009-09-17T14:32:00.000-07:002009-09-17T14:32:24.385-07:00

It's getting hot again. Always good for the MS!  I wasn't paying any attention to the weatherman, which is highly recommended when one is hypersensitive to heat such as I.   With the increasing heat I will need to get an earlier start with the horses.  But my morning yoga/meditation was greatly appreciated and a necessary habit to reacquire.  Today was pretty good.   Yeah, it was good.  It's

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-14201518555246511302009-09-17T08:27:00.000-07:002009-09-17T14:36:41.406-07:00

Another morning and it's beautiful.  Yesterday I did some stretching and meditating before riding and am off to do a bit today.  It's so necessary for my MS.  The yoga work is crucial.  I've taken about a month off and that's too long for me.  But now it's back in habit and that's good.  It helps mostly with my nerves, patience, anxiety and overall strength.  There are a couple of deep working

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-82068376360277570912009-09-16T16:54:00.000-07:002009-09-16T16:54:26.175-07:00

I'm feeling burned in several ways.  Regenerating in others.  There's enough green on me to keep growing.  I actually thought that Buzz would come down from the fire.  It's been five years since we separated.  And I actually thought that she might reappear.  17 March 2004, the worst day of my life to date.  I lost my hound dog, Buzz.  And I would talk about it but I've cried enough today.  Or

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-10737129529686959632009-09-15T20:45:00.000-07:002009-09-15T20:45:01.699-07:00

Actually this has nothing really to do with MS.  Except for the fact that I'm losing use of my fingers, thus time to go to bed.  But, made a healthy dinner of wild caught Alaskan cod, corn, cabbage, heirloom tomato and basil salad, asparagus, avocado and...  Well.  Maybe that was it.  Because it was a heck of a lot of food.  The redtails fly over the scorched hillside across from our deck.  The

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-45973725205196669562009-09-15T14:36:00.000-07:002009-09-15T14:36:52.793-07:00

I had a great night sleep.  Worked on some fun projects last night - a photo collage for the kids at the barn.  I woke up feeling great.  Been taking some medicine for my throat and feeling much better.  In fact, better take some right now, with a big glass of water.  Just a sec... Ah, much better.  OK, weird day. I don't know what it was/is.  Horses were feeling brisk, definitely fall is in the

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-46524949942079331122009-09-14T18:07:00.000-07:002009-09-14T18:07:41.648-07:00

Granted, this photos is some fifteen years old, but the process of jumping hurdles is the same as it is with the MS.  Size up the situation, approach it with thought and consideration, and let the rhythm flow. 

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-57847491708773337732009-09-14T10:18:00.000-07:002009-09-14T18:08:23.810-07:00

OK, Maybe the pozole won't heal my MS but it sure went down nicely with the fresh cabbage and radishes on top.  The flavor wasn't too hot as I mild it down for my folks using about half the spicy ingredients.  But it did the job and I fell asleep sipping a hot noddy and watching Family Guy. Talk about lack of control - I just found out that Pepper is not coming next week. May not ever come or ..

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-3880185980703501482009-09-13T17:15:00.000-07:002009-09-14T10:12:34.529-07:00

Nutrition - one of the top five medicines for Multiple Sclerosis. Everyone has an opinion.  I go with what works for me.  In addition, I studied and became certified in holistic nutrition education from Bauman College in Northern California.  The awareness my studies brought me continues to play a significant role in my health and well-being.  Tonight it's Julie and Julia with MS.  So, what

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-68169284089532181952009-09-13T11:51:00.000-07:002009-09-13T11:51:56.281-07:00

What a morning.  Walking with the ol' hound dog and I break down in tears.  What do I have control over?  Everything from horses to when I eat to feeding my dog seems to be controlled by someone other than myself.  I know it's healthy to let go and I don't understand why I'm so angst ridden over it but maybe it's because the people making the decisions are often incompetent.  All my dog needs is

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-84256295888370071932009-09-13T07:29:00.000-07:002009-09-13T07:29:04.270-07:00

You are probably wondering about Doodles and LeLe if you read yesterday's post.  They will play a bigger role as we continue.  Sometimes it's easier for me to understand MS if I put it into another character or person.  In other words if I can assume that LeLe is me and I can manager her MS from the outside as well as the inside, well it just helps manage the disease. But for now it's Sunday

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-76973506831419307722009-09-12T16:53:00.000-07:002009-09-13T16:29:30.346-07:00

Doodles and LeLe have both had major life changes these past five years.  One lost their best friend of 25 years.  One got sick with multiple sclerosis and lost her identity. LeLe enjoys her sweets  Doodles and LeLe enjoy healthy activities together   And sometimes not so healthy activities But all in all they have a healthy friendship which is very important for both to grow through their

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-3507000913986616132009-09-11T16:57:00.000-07:002009-09-11T18:08:08.334-07:00

Time to play hooky. At least for the morning.  Cow country.  God's country.  Good music.  Great friends.  And what a much needed holiday it was!  Amazing what just a few hours of ranting, venting, driving can do. I could feel the tension leaving as we drove through the valley and over Santa Susanna Pass into Simi Valley.  Then I breathed deeper when we reach the 118 and farmland.  The visual

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-33956577990857173222009-09-09T08:01:00.000-07:002009-09-09T08:01:41.618-07:00

I'm a little more MS-ie today than usual.  Had a pretty mellow day yesterday.  Got my nap in and went to memorial service.  Had some wine, good dinner and a little whiskey when I got home.  Worked on some fun projects last night - just really some good e-surfing and stuff.  My legs feel OK, not too crampy.  Had a nasty taste in my mouth this morning.  Better double rinse today.  I'm a bit out

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-52575527777371292222009-09-08T21:08:00.000-07:002009-09-11T16:57:55.058-07:00

MS is a disease.  It's a distraction.  Multiple Sclerosis.  I get it.  Many scars. But what a name for those who often lose their ability to speak or enunciate.  That is so annoying!  I can see the word but can't get the lips to say it right.  and then try to say Multiple Sclerosis.  Heck.  And MS?  nobody even knows what it is.  I didn't.  Unless you know someone with the disease it's difficult

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-76457274750333880162009-09-08T16:12:00.000-07:002009-09-11T16:58:10.445-07:00

I had great intentions of getting some additional projects worked on today, but alas, another nap.  The exhaustion that comes with MS can be so inconvenient.  My body is on a "healing" mode and has slowed down.  I must listen and abide to it.  The body.  You can't fight the MS.  But you can try and that is what one does with all of the western medicine for the disease. Most of the 'medicine' is

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-63796400254061195412009-09-07T16:56:00.001-07:002009-09-11T16:59:22.097-07:00

spot-6375 Originally uploaded by nonisenseSometimes you just have to come to a stop and slow down (meet Spot - 4 yr old gelding). Right now I'm riding just enough to get the motion and movement but not enough to overheat and overdo. It's a daily balance of integral therapy as I'm learning. A whole new study to take interest in. The balance of physical, spiritual, mental and emotional.

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-7339120148701157682009-09-07T13:24:00.001-07:002009-09-11T16:59:22.098-07:00

_MG_8633Originally uploaded by nonisensethat's me right now - bah humbug! wouldn't mind taking a nap. Feel like I need one. Body worn out. But good friend, sister, is here and want to play. Isn't that often a big problem with MS is finding a balance with energy and demands? Wishes and desires. Abilities and frustrations. But this little Icelandic sheep, Oyster, makes me smile. Such

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-28731385587309473752009-09-07T09:06:00.000-07:002009-09-11T16:59:22.098-07:00

So now I'm thinking of starting a nonprofit that works with horses and MS.  A way to afford the horses and to ride and to help others and to stay healthy.  I'm not exactly sure how it would work but if it would allow me to share my knowledge with others and to help the cause then that sounds pretty darn cool.  Sometimes it's the loneliness I feel that is somewhat caused by the MS.  A small

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-35957552484900684792009-09-06T17:05:00.000-07:002009-09-06T19:46:33.048-07:00

Movement therapy.  I know nothing about it but believe in it.  Nothing calms my MS better than riding my horses.  Even just at a walk.  Or a trot.  Rhythm, balance, movement.  And I sweat!   That sounds weird but I don't have to work hard, it comes easy, I sweat out toxins and cool off my body. I have actually been able to stay out in the heat this summer.  Granted I water down often and I'm not

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-82073238020724548382009-09-05T19:51:00.000-07:002009-09-11T16:59:22.098-07:00

I've been bombarded by liquid amber pods struck down from above by angry squirrels.  One of which scolded me for at least five minutes while I was in his or her way to get home or something.  There are rats the size of bobcats scrambling around the backyard.  I'm pretending not to notice. they just need salvation. Don't we all! One thing above all that I have learned with my MS - salvation.  A

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-55570511254194891092009-09-05T19:40:00.000-07:002009-09-23T08:13:06.852-07:00

I was just told by one of my friends that I was acting like a prima dona.  My friend who has been in bed all day.  I have been working.  But I chose to eat twenty minutes after they did.  How dare I?! This sort of crap makes me want to move.  I have offers.  Maybe it's time.  But I don't think so. Not yet. Sometimes with MS you have to be a Prima Dona.  Boundaries become mand-A-tory.  Most of

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-8485368570567278182009-09-05T17:33:00.000-07:002009-09-11T16:59:22.099-07:00

When folks ask me if I'm in remission with my MS, I say no, I'm in re-management.  Each day has the possibility of being a complete setback if my health is mismanaged.  And I'm not that good at managing it.  I try, no doubt.  But i have my weaknesses as we all do.  It starts with going to bed the night before, in a peaceful, quiet state of mind. I don't often achieve that so its something I'm

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-35627318649967805772009-09-05T16:08:00.000-07:002009-09-11T16:59:22.099-07:00

All around, and still burning, the mountains char.  Makes one want to eat sushi or something cold and clean.  Too much searing going on. Today was another blessing as the weather/air quality improved I was able to ride a bit.  It's the rhythm and affection from the horses more than anything.  Not that the horses give a lot of affection.  But at least they acknowledge your existence and

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-4701465166048446922009-09-05T13:59:00.000-07:002009-09-11T16:59:22.100-07:00

How often I have had to redefine my abilities or lack there of since I was hit out of the blue eight years ago with MS. Well, I say out of the blue, but if I had listened to my Chinese medicine doctors who both told me I was kidney yen deficient my life would be very different.Even today, if I follow I kidney-yen friendly diet I do much better in the health department. But I needed the slap in

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-13626604796276862392009-09-04T17:00:00.000-07:002009-09-14T08:07:19.897-07:00

The smoke is clearing a bit. Always better in afternoon since the fires have started. Different then with my MS which is better in the mornings, usually. Or after my naps. I seem to have become familiar with afternoon naps. Especially in this heat. It's been around 100 most days. The ash and smoke was bad for days but it's actually showing blue sky right now. Twenty five years ago I had

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-78386507331364154142009-09-03T14:48:00.001-07:002009-09-11T16:59:22.101-07:00

It's been a crazy six months and more has happened than I can type. All I can say is that we can learn to manage our MS and live a better life. There are many tools out there for us! Find friends and family. Find happiness. Garden, work, play. Enjoy life.

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-5712988526489511702009-09-03T07:22:00.000-07:002009-09-11T16:59:22.101-07:00

Wild week. Station fire. Evacuation. 25 feet away. Interesting to see what I packed, why I chose what I did and the emotional process of possibly losing my home. Top 15 items of choice (in no particular order): hard drives photo albums computer camera equip. first edition, signed books, grandmother's bible and more stuffed animals (yes, me, including an

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-3312418178119092602009-02-27T15:39:00.000-08:002009-10-21T18:40:05.296-07:00

Strange but peaceful day. Had straight caffeinated coffee this AM and it sent me through the roof. About thirty mins of yoga later, bathe, meditation and I felt some what OK to ride. Hmmm. it all went well but I felt out of sync with myself. The horses were great - bringing a sense of rhythm to me. Pepper was good. Just moving her forward - off the spur. The spooking is a stupid habit she

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-66699623971405578522009-02-08T04:49:00.000-08:002009-10-21T18:42:40.145-07:00

multiple sclerosis The horses have been a huge help for my MS.  Riding again.  Movement. I haven't ridding in some 15 years but it's coming back. And for once since my illness attacked me I feel as if I can do something useful. Not just brain work but really useful for me and the animals.  I'm feeling a bit MS-ie lately but its because I'm not taking the best care of myself.  Yesterday was a

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-23396097983945654062009-02-01T09:30:00.000-08:002009-09-11T16:59:22.102-07:00

One thing you do not want to do with MS is stay up really late, drinking lots of red wine and eating mass quantities of fondue. Now granted, many movies were watched, friends were close, laughter loud...but no, that's not something to do with MS.  At least if you do it, then make sure you have nothing much planned the next day that involves using heavy equipment. I found brainstorming to work...

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-34710399499272028122009-01-28T18:58:00.001-08:002009-09-11T16:59:22.102-07:00

Today was a bit of an MS day.  My fault exactly.  I sipped a bit too much whiskey last night then got up and rode four horses.  Not the healthiest or wisest approach. Time to settle down now.  Went and saw Doubt today.  Incredibly tight in all aspects.  Dug it.  Tried Benjamin Button yesterday. Wanted to like it.  But it didn't do it for me. Tomorrow I'm heading up for some wine tasting in

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-29135494571289350362009-01-24T15:07:00.001-08:002009-09-11T16:59:22.102-07:00

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-49718758995774688832009-01-23T14:09:00.001-08:002009-09-11T16:59:22.102-07:00

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-15235064709997658302009-01-23T13:45:00.001-08:002009-09-11T16:59:22.103-07:00

Can't feel my finger tips.  Definitely the MS.  Could be the rain and soggy riding I did but that was all good.  The riding is critical for my health.   Been thinking a bit about MS today.  Just read an article about a new medicine by Biogen that might help rebuild the damage done to the nerves with MS.  I still think prevention is the best solution.  Forget the western medicines that cover up

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-36269580809160828042009-01-21T15:08:00.000-08:002009-09-11T16:59:22.103-07:00

I rode three and half today. one was about 12 hands so I only considered it a half. Penny the Pony. They were all fun. I rested long last night. Something about Multiple Sclerosis - you must manage every aspect of your energy. I was tired yesterday. Really worn out. Light meal, light protein. A warm salt bath. Bed and a good night sleep. I could feel my lifeline burning. Too much.

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-38612411401003238682009-01-21T07:44:00.000-08:002009-01-21T15:49:02.298-08:00

My laptop is doing the most annoying thing. Somehow it thinks that Times New Roman is some other, artsy funky font I downloaded for a project.  Just something else to figure out.    Riding has been a great move for me.  Getting that blood flowing. And I'm really sweating.  Today was humid.  I had a polo shirt on under a light breathable windbreaker and I soaked it good.  I think this is good for

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-60528776677142184712009-01-13T00:20:00.000-08:002009-01-13T00:24:39.795-08:00

FarmGirl we started out as. MS Girl we've branched into. The fact is, MS doesn't have to be the life sentence many think it is. A consideration of fates that never crossed my mind. If it wasn't killing me, it sure as hell wasnt taking me down this sissy-ass way. Come on. We are so much stronger than our disease. We just need to work together and find our strengths, our weakness, and use our

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-22770098217161185582009-01-13T00:18:00.000-08:002009-01-13T00:20:20.035-08:00

MS is a malfunction of symptions, there is no doubt. when it hits me it messes with my thermostat. Hot, Cold, who knows. I can often heat a 9'x9' tent, family of four, at no charge. I'm a radiator on fire. I try to eat accordingly. Mung beans, fruit, cooling foods, aloe, I get it, but come on! sometimes one just wants some cheezy nachos strips and a beer. Help me now MS girl!

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-42758562002480701562009-01-13T00:12:00.000-08:002009-01-13T00:18:02.071-08:00

The titles will immediately change as I don't remember things after #2. But here we go. MS can really suck at times. Oh man. Most embarrassing moment? Imagine loss of blatter control, menstration and a board meeting. Despite the fact you were wearing a very chic, NoHo outfit and stacked boots... Had to excuse myself from that one. But then as soon as I say this, another moment hits, "moshy

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0tag:blogger.com,1999:blog-2619382468735542584.post-24451760780309689402009-01-11T12:44:00.001-08:002009-01-11T13:00:30.103-08:00

Welcome to the start of what will most likely be a random stream of consciousness from me about my experiences with multiple sclerosis (MS). Folks have asked for a book, suggested a blog, and here we go. I haven't much control over my right ring finger right now making typing accurately a bit more of a challenge. And there went the wave of the little left finger about to go. I deserve it.

a friend with multiple sclerosishttp://www.blogger.com/profile/17460160703198008823noreply@blogger.com0